Throughout the years, we have heard so many inspiring stories of commitment at Night of Hope. We caught up with a few of the stories you have heard through the years to hear why they are still in this fight.

Karen & Tony Vick's Story: 2020 A Night of Hope The Tom Watson Award for Courage Recipient 

The last time we gathered for A Night of Hope Gala was in 2020. That night we heard Tony & Karen Vick's story as they were honored for their courage. So many individuals were left in awe of Tony & Karen's strength, grace, and hope. Karen provided insight on how their life has changed since we saw them in 2020. 

The Betzelberger Family's Story: 2009 A Night of Hope The George Brett Award for Commitment Recipient

Terry learned of his father's ALS diagnosis, shortly before his freshman year at KU. A few years later, his father passed away and Terry has been fighting for the ALS community ever since. He joined forces with a few others, in developing a local ALS society in the 1980s and served on The Chapter’s board for over 20 years. In addition, he, along with his family, continue to sponsor events, fundraise and raise awareness of ALS. Terry said, “I hope to see the end of ALS in my lifetime.”

Conn, Miller, and Mann Families Story

Dr. Robert Conn (Bob) was diagnosed with ALS in 2010. His daughter Linda said, “After my dad died our family wanted to honor him by continuing the fight against ALS.” Over the years, the Conn, Miller and Mann families have supported and participated in many Chapter events. Their team, “Bob’s Battalion,” has been a top fundraising team for several years at The Kansas City Walk to Defeat ALS. In addition, the Conn, Miller, and Mann families are regulars at the annual Night of Hope Gala.